Two and a Half Weeks After Repair and Reconstruction-Graphic Content
Today was a another day of rest. I felt a little guilty staying in my pj’s and napping all day, until I realized I’m only 2 and a half weeks from surgery. Considering how awful I felt after surgery, I can’t believe I feel as good as I do.
My first day back at work didn’t go so great, I ended up only being able to stay for a little more than an hour of my first 5 hour shift. I came back home and slept for a few hours and went back for my last 4 hour shift. I ended up taking my pain meds that night. Each day got a little better.
I had my week post-op appointment, my sutures were removed and I had a brief exam. I didn’t watch the sutures being removed because, as we’ve already established, I’m a chicken. I was hoping to have the remaining bandages removed, but they have to stay until they fall off. Everything looks good so far. I asked the doctor “What’s next?” and he replied “Now we wait and see if this works.”
I did ask him a few questions. He thought I was kind of dorky (I am), but after he laughed at me I explained that these implants are so different than my last ones, so I’m trying to figure out what the new ‘normal’ is and get familiar with my new body. Basically we established that my swelling is mostly gone. The muscle was pulled away from the lower part of my breast bone to make room for the larger implants, which then puts the implants closer together and look more natural. I still have to be very careful, it will be very easy for the muscle and Alloderm to tear again and I don’t want to go through that painful repair again.
The pain was worse than I expected, but the hardest part turns out to be this long recovery process. There is so much that I can’t do, and I’m constantly reminded of the surgery whenever I try to do something that could hurt me. Grocery shopping is a great example, I can’t lift dog food or heavy bags, and have to be careful unloading from my car. I can’t push the vaccum cleaner, and bending forward to do things like unload the dryer is painful, and even when it’s not painful, it could still cause problems with the repair. These are things I have to be careful of for maybe 6 months.
On the funny side, each night when I get home from work I practically run into my bathroom, pull up my shirt and lift off my bra to check to make sure everything is still in place. I’ll check again before going to bed to make sure that my left side is still where it should be.
I have to say that my spirits aren’t what they usually are. I try very hard to seem normal and upbeat, but it’s a struggle. I’m tired. I’m emotionally worn out. I’m constantly reminded of things I can’t do, and if you know me, you know that I’m usually asking “what’s next?” or “why not” instead of having to say ”I can’t”. I hate feeling, and actually being, weak.
Would I do it again? Absolutely. I see the photos of my breast friend Tammy as she waved at the camera last week during her last chemo appointment. I can’t imagine how difficult her path has been, and all of my other breast friends that have had to face cancer. I have done what I can to avoid there ever being a photo of me from chemo. I cry for them, these strong and amazing women and the things they have to go through. It makes my complaining about reconstruction seem trivial.
So now I’ll finally answer the question everyone has been asking me: “How does everything look??”

Two and a half weeks after reconstruction repair

Two and a half weeks after reconstruction repair

Two and a half weeks after reconstruction repair

Two and a half weeks after reconstruction repair
And for comparison, this is a photo from about the same after the original implant swap:

Looking at the two photos, it looks like the took my boobs off and put them back on in the right place. And I think that the original implants look larger than the new ones, probably because of the placement. But the new ones are bigger around, so they fill in the the strange areas at my breast bone and under my arms. The tail of the breast was recreated by the larger implants instead of by fat transfer. I’m so thankful I didn’t have to go through the fat transfer process.
Thank you all for all of the wonderful emails and for your thoughts and prayers. I’m looking forward to next week, to see what happens next!
January 16, 2011 | Categories: Full Blog, Medical Updates | Tags: breast expanders, breast implants, breast reconstruction, failed breast reconstruction, reconstruction repair | 28 Comments »
One Big Difference Between Silicone and Gel Implants
I did forget to mention the biggest difference I have noticed between Silicone and Gel implants. All of you ladies that have silicone are probably familiar with the weird cold flushing feeling through your chest when you drink something cold…I’ve had it mentioned to me several times by women that had reconstruction with silicone. I don’t get that feeling at all with Gel. I have noticed since my surgery last week that I have lost some of the feeling I had gained in my breasts, so maybe I just don’t feel it yet, but I remember feeling it right away with the silicone implants. Just thought I’d share.
January 3, 2011 | Categories: Full Blog, Medical Updates | Tags: breast implants, breast reconstruction, difference between silicon and gel implants, gel breast implantas, silicone breast implants | 4 Comments »
Back To The Land Of The Living-Graphic Content
Happy 2011! I can’t believe how difficult but rewarding 2010 turned out to be. One year ago I was getting ready for my bilateral mastectomy surgery, preparing to be finished with reconstruction by June. I never would have guessed that one year later I would be in bed, recovering from additional surgeries, still at least 6 months from the finish of my reconstruction.
I know I’m fortunate, though, because I have met and found so many wonderful people during the last year. And it is so wonderful that we are all a support system for each other.
I’ve had other wonderful things happen, like my involvement with NORRA and becoming a part of the NORRA family. NORRA and Team Courage have been 2 of the main things that keep me going, after of course my family and BFFs.
Today is my last day of ‘recovery’, I’m able to go back to work tomorrow. Although if you’ve gone through breast surgery you know that recovery tends to go on and on and on. I had my second post-op appointment today and the doctor said everything looks good for now, but we just have to hope the stitches hold. Wearing a bra 24 hours a day helps keep gravity from putting pressure on the stitches, and will hopefully be enough to allow everything to grow together properly. It will take several months for everything to heal and for the muscles to attach properly. Until then I can have ‘life as normal’ except no bouncing under any circumstances. That makes me giggle. As if reconstructed breasts could bounce! I get the idea, though, no horseback riding, off roading, jumping, or jogging.
My last surgery was one week ago tomorrow, and I’m feeling better today. I still look washed out and not so great, but I feel better. Today is the first day I can stand and sit without hurting. The places where the Alloderm was stitched to my ribs is the worst. Today is the first day that those stitches don’t burn and hurt constantly. That’s really where the feeling of being stabbed by a rusty screwdriver was the worst. The spot on my breast bone where the muscle was cut away to relieve pressure is still very swollen and tender. For the last week I’ve heard a very disturbing gurggling noise when I move certain ways, I guess it’s the blood and fluid that would normally come out through a drain. It’s loud enough to hear standing next to me, it sounds like a loud tummy growl, but it’s from my chest. That really grosses me out. I haven’t heard it today, so maybe most of the fluid has been absorbed. I won’t miss that at all.
My last implants were silicone, my new ones are memory gel. I’m still too swollen and painful to really tell a difference, but they feel softer and more real at this point. The difference between the 400 cc silicone and 550 cc gel implants is not drastic. After the swelling is down I may still wear the same size bra as before. But I can tell the biggest difference on the top and the sides of my breasts. The most disappointing aspect of my last implants was that when looking at me in a bathing suit or tank top, the sides of my ribs under my arms were wider than my breasts, which made my breast look like they were just stuck on. My last plastic surgeon called that area of the breast along the side and under my arms the tail of the breast, and had wanted to fill it in with fat transfers. My new surgeon said it could be filled in with a larger implant. Agian, I’m not sure how it will be after the swelling goes down, but for now I look much more natural. I am very happy with my results so far, and I’m thrilled that I’m not also recovering from lippo because the pain from the repair of the torn muscle and fallen implant was awful. Much worse than the implant swap. It was very similar to the pain following the mastectomy, at least on the damaged side.
My dog, Cesar, and my cat, Callie, have been by my side non-stop. And sometimes closer, if possible. I spent the last week sleeping, with an afgahan made by my great aunt and a quilt made by my grandmother before I was born. This is how Cesar tries to make things better.

As for results so far, this was a photo taken 5 days post op from my first implants….

Implants 5 Days Post Op
This is a photo 5 days after my repair and new implants…

5 days post op 2nd implant swap
So, there you go! Hopefully I will manage to take it easy over the next 3-6 months and that this repair will hold. I don’t know what will happen if it doesn’t, if that means I won’t be able to have another reconstruction. I did find out that I will eventually be able to off road again, and I will be able to do things like kite board like I dream of doing. So that’s great news. I just have to keep my body parts from falling off for the next 6 months. Keeping all fingers crossed!
I hope that 2011 is a wonderful year for you all, and that you are all as happy and healthy as you can be.
January 3, 2011 | Categories: Full Blog, Medical Updates | Tags: bilateral matectomy, breast expanders, breast implants, breast reconstruction, N.O.R.R.A., NORRA, team courage | 3 Comments »
Wise Words From a Psychiatrist About PBM
Today I had a wonderful ‘visit’ with a psychiatrist. He’s helping me personally, and also helping me put together a program for women facing and recovering from breast reconstruction. Helping women like me cope with the psychological effects of recovery. It was very informative, he told me that the psychology behind the decision to have prophylactic bilateral mastectomy is very interesting. He said that it obviously shows a strong woman, a woman that is willing to face the fear and pain of the surgery and reconstruction to prolong her life. It also shows that the woman is thoughtful of her health, willing to go through the surgery and reconstruction to stay healthy instead of taking the chance that she won’t get breast cancer. It also shows that she is more concerned about having a long healthy life than she is about how she looks, and is willing to give up her breasts to live a longer life. I think this is very important for the women that are faced with the comment “it’s just like having implants”, because I think the most hurtful part of that statement ISN’T the suggestion that we won’t face more hurt or emotions or trauma than a woman getting implants, but that we are doing it because of how we want to look. Those people that say those things have no idea that we will never look like a ‘normal’ woman again, and that the size of the implant has nothing to do with replacing or making better the breasts we had prior to surgery. There is simply no comparison between our bodies before and after surgery.
I mentioned to him that many of my ‘breast friends’ seem to be going through a little depression. He explained it very well in that we put so much of our energy and emotions into getting through the surgery. We create possitive energy for ourselves without even realizing it, just to get us through, because although we have support from our family and friends, no one really knows how much it takes just to get through it. Once we are through the mastectomy and are facing the delays and trials of reconstruction, we hit a low point because we have expended so much energy getting through to the recovery, just surviving and being there for our family and friends. Although we need them, we often end up having to put on a brave face for them, and it’s just sometimes more than we can do. We fall into a depression, where we need to sleep and withdraw and recover the energy that it took us just to get through the surgery. Not to mention the grieving process, because there is a grieving process as we lose a part of our body, and it doesn’t mean we’re shallow or vain to mourn that loss.
As he explained that to me I felt a light bulb go off! That’s exactly right! And it immediately brought to mind my little break down at Scorpion Bay in Baja after finding the lump that lead to all of this. I remember being devistated, and crying and crying, not because of what I faced, but because it was the only time I felt that I could. Once I came home and started my journey for real I needed to be strong for my family. I couldn’t break down and be devistated in front of them, if i did, who would get them through it?
I think having a ‘group’ would be great. I know there are a lot of groups out there talking about breast cancer, or other types of cancer, but I really feel that my focus with my own projects should be reconstruction. And luckily he’s willing to help out as well. So now I’m putting together a little session for women in the area that are facing this journey too. I can’t wait to get started.
December 15, 2010 | Categories: Full Blog, Medical Updates | Tags: bilateral matectomy, breast cancer, breast implants, breast reconstruction, finding a lump, help others, prophylactic bilateral mastectomy, reconstruction | 7 Comments »
Yeah, So, My Boobie Fell Off.
Well, not fell off exactly, but it’s a catchy title huh? How about “My Boobie Fell Down?”
My surprise at the appearance of my left breast was not my imagination. I was able to get in to see a doctor on Friday. Luckily, it was the same doctor that treated me during and after my blood clot in January and February and was already familiar with my progress (Dr. M). I also made an appointment for Monday with my plastic surgeon in Denver (Dr. W). Both were very enlightening appointments.
As soon as Dr. M opened my drape he said “Ohhh, yeah, that’s not right”. I felt so much better. At least it wasn’t just my overactive imagination. He felt the breast and the area underneath it and confirmed my thoughts, either the implant was ruptured or something was torn and it was sliding down my abdominal wall. He told me it wasn’t an emergency, and I wasn’t in any danger, but it did need to get looked at by my plastic surgeon as soon as possible.
I really like this doctor so much because he’s the first one I’ve ever been seen by that talks to me like a human, a friend, like he really cares what’s going on. Of course I also pretty much credit him with saving my life when the hospital totally mistreated me as a mastectomy patient when I had my blood clot, so I guess you tend to have a different type relationship with the doctor that ‘saved your life’. After talking about the obvious problem of the current placement of my implant, he started asking some other very good questions.
He pointed to the edges of the scars on both sides, where they are kind of puckered. He called these ‘dog ears’, and asked if Dr. W was going to fix my dog ears. I answered that I didn’t know, we hadn’t talked about it, but that I guess I had just assumed that he would. Fixing those would help correct the flat look. He then drew a circle on my left breast and asked if I was going to have nipple reconstruction. I told him that I had just finally scheduled it, and would be doing basically a little twist of skin and tattooing.
He looked at my chart and said “You’re only 38. You’re young. Why would you settle for nipple tattooing that will need to be touched up later and won’t ever really look real? Don’t settle for less than as real as possible. You won’t be satisfied.” I kind of blinked and thought ‘why AM i settling for whatever my doctor tells me is normal? why do i have to readjust ‘normal’?’ He then suggested skin grafting. Ouch. I told him about my friend Heather (Hi Heather!) and how painful that was for her, but that I had seen photos and they looked amazing. He said “Yeah, it hurts. But there’s nothing that can compare to the results, and you’ll have a week of discomfort and then have as close to normal looking nipples as possible instead of having tattoos forever that you aren’t happy with. I strongly suggest you think about this.”
Hmmmm. So then I mentioned that I wasn’t really happy with the shape or size of the reconstruction so far. What he said next was the most important thing that anyone has said since I began this journey.
“Why are you willing to settle for this? If you are not happy, you need to tell your doctor on Monday. And listen to what he has to say about this repair and the rest of your reconstruction, and if he’s not willing to make your reconstruction what you imagine it should be, or at least try, say “Thank you” and leave and get another opinion. Do not accept less than what you deserve from reconstruction, even if you have to go somewhere else to get what you want.”
I thought about this a lot over the weekend. I get so many emails from other women that are unhappy in different phases of their reconstruction. Why are we so willing to take whatever is given to us in the end, and accept where we are left? I understand that some of us have radiation and chemo that damages skin, and we all have different shapes and sizes to begin with that can only be stretched and manipulated so much, but why are we so ready and willing to accept someone else’s definition of what is normal for us? I think a lot of it has to do with the fact that we feel a little beaten. And a lot less than normal, or whole, and we look to our surgeons for advice and to save our bodies from the ashes of reconstruction. But he was right, it’s up to me to express that I’m unhappy, and to look to other answers if I’m not getting the feedback I should.
I did feel that I expressed to Dr. W during my post op appointment that I was unhappy about the results. I had decided to make sure we were on the same page when I went back on Monday to have my latest problem examined.
It was funny to walk through the office and see the nurses looking at my chest (it is obvious at a glance that something is ‘off’). If you know me, you know I try to keep people laughing and smiling, so when they asked me how I was doing I answered “Great! I mean, except that my boob fell off”. They all think I’m a little goofy.
Dr. W came in right away and immediately said “Oh, yes, I see the problem”. Ha ha ha, really? Don’t get me wrong, I like my surgeon a lot, and I trust him, but this situation is stressful and yet funny in a bizarre way. Anyway, he explained that I have popped the stitches below the breast, causing the implant to slide down my abdominal wall. He said that it shouldn’t go any lower. He said he could restitch the areas when I came in for my next stage on December 30th. I mentioned that it was the same side that used to be flat underneath, and he said “Only God can make curves” (but I ‘ve always had a curve on the other side? did only one stitch pop on that side? I’m so confused!) and he explained that it might look flat again after he does the repair. They also ordered another implant, in case this one is either already damaged or gets damaged when they remove it to do the repair. So they will re-open me, remove the implant, restitch the alloderm to my chest muscle, and then replace the implant. I’m assuming I won’t have drains because they will be doing the first fat transfer at that time.
We talked a little more about it, and I mentioned that I think the stitches were torn right away because, as I had mentioned at my last appointment, I was kind of unhappy with how things were turning out and that it was mostly because the two sides were so different. He was surprised that I was unhappy, and didn’t remember me expressing that in my last appointment. And to his credit, I probably was kind of nice about it and only hinted at my unhappiness and expected him to get it. Well, I’m a woman hinting that she’s unhappy to a man that just made boobies. Like he’s going to hear a hint! Totally my fault for not being more straight forward.
After he left the room I sat with the nurse and went over the next apointment and what to expect. I said “I know you’re tired of me saying this…” and she said “…but you want them bigger”. I explained that it probably sounded vain to her, and that I knew Dr. W was satisfied with my results, but that I”m not. We go through this a lot. Pretty much every appointment he tells me the size looks great, I tell him I want bigger. Even my video of my last expander fill has this conversation. He had said during my post op appointment that my size was good because I have an athletic build (I think I’ve already talked about this). I was shocked. I will agree that I have tiny arms, shoulders, ribs and upper body. I’m not athletic, and I’m very curvy. I have come to terms with this, and I’m proud of my curves! I like having a curvy butt! But I would like to be porportioned better, and now is the only time for the rest of my life that I have this chance. Once we’re finished, we’re finished. I said all of this to her. She said I really don’t have a lot of fat to transfer, and I said “take it all!”. Afterall, I’m a southern girl that loves food, I’m sure I’ll make more! I’ve had a curvy butt for over 20 years, I don’t think I’ll have trouble getting it back. And I didn’t mean for them to take all of my butt, I meant to take all of the extra fat, even if they don’t think there’s ‘very much’.
I have another appointment right before surgery to discuss everything. Before then, I have 2 appointments with 2 other surgeons to get their opinions of what exactly is reasonable to expect, and what is possible. I did cancel my nipple reconstruction, and I’m seriously considering the skin grafting. I plan on talking to the other doctors about that too. After this experience (the fallen breast), I know I want to wait until my scars are very faded before I do any nipple reconstruction. I want to make sure everything else is finished first. No more fat transfers, no more swelling, no more anything, just nipples. I still trust my surgeon, but I need to hear from someone else what is possible and realistic. I don’t wan’t to walk away with what Dr. W thinks is the body I should have, I want to walk away with the best reconstruction I can have.
But more important than sharing this part of my story with you, I want to make sure that you also ‘heard’ exactly what Dr. M said. DON’T settle for what someone else thinks is right for you. No matter your age or point in life, we go through reconstruction for OURSELVES, no one else. We deserve to have the best results possible for our bodies, and we owe it to ourselves to speak up if we feel that something is not as good as it can be. And there is nothing wrong with getting another opinion. Reconstruction is something we hopefully will only go through once. It may be a pain in the butt, but if you need to, drive to see another surgeon. Get all of the information. Don’t settle. You’ve been through enough. You deserve to feel beautiful.
Did you hear me??
YOU DESERVE TO FEEL BEAUTIFUL!!
I love you, my BFFs. Don’t give up.
You
Are
Beautiful
November 24, 2010 | Categories: Full Blog, Medical Updates | Tags: alloderm complications, bilateral matectomy, breast expanders, breast implant repair, breast implants, breast reconstruction, breast reconstruction complications, fallen breast implant, implants, reconstruction, what to expect from breast reconstruction | 15 Comments »
Coming Face To Face With My New Body
This morning started off as a normal Sunday around the house, making breakfast, enjoying a relaxing cup of coffee before the day got started. It’s Halloween, and we decided as a family to go to Grand Junction to get Jamie a costume at the last minute.
I was walking around the house in my pjs for awhile. My top was a little tight, and while looking down I noticed that without the bandages that we removed last night, my breasts were a little odd shaped. Kind of flat across the front. I pulled up my shirt to investigate and could tell that on either side of each incision there is some swelling and there are still stitches under the skin, causing the ends to pouf out a little bit and making my breasts look flat. I remember that last time I was swollen in the same places and it eventually went down, leaving a nicer round shape.
So we trekked to Grand Junction, about an hour away. We bought Jamie a hysterical chicken suit (I’m so lucky he has such a great sense of humor!) and walked around a bit. We pigged out on mall food and decided to go home.
As we were leaving the mall, we passed Victoria’s Secret. I’ve been wanting a new bra, I haven’t bought one yet, and decided it was a great way to celebrate the end of the second phase of breast reconstruction since my bandages were removed.
So I walked through VS, excited about new girly things. I picked out something without a lot of padding and in fun colors. I picked out a pretty aqua bra and a royal blue one. I thought splurging should include fun as well as function!
Although I had been measured right after the implants were put in, I still wanted to try on the bras to make sure they fit properly. I went into the fitting room and took off my sweater and bra and took a look at my beautiful new scars.
I almost dropped to my knees. I think I said “oh, no, no” out loud. I felt like I had been hit in my stomach as I looked at myself without bandages for the first time.
I was not prepared for how I look. Not even close.
The swelling has gone down a lot. My right breast looks misshappen. The scar is almost in the same place as before the surgery. Under my bresast the skin tucks under kind of like it should, but around the breast bone it’s a little odd.
My left breast scar is much higher, which I think is the biggest contributor to my shock. The scars were even when I had the expanders. The scars being so different, not symetrical, makes the whole thing look worse. Also, the skin under my left breast doesn’t tuck under like the other side. I can tell by looking that not only is the implant lower on that side, but it’s sitting differently, or the muscles are different, or something.
I think more than anything it had just been about a week since I really looked at myself. Probably since the last published photos. I’ve changed a lot since then, and the removal of the bandages revealing the mis-matched scars was surprising because last time the scars were even.
Anyway, I swallowed my sadness and tried on the bras. Covering up my breasts made me feel better. I put my clothes back on and left the fitting room, but I was still devistated.
Jon and Jamie were waiting, expecting me to be excited. I couldn’t look at them. I couldn’t speak to them because I knew I would cry. I put the blue bra back, but I decided to keep the aqua one because I knew I will come to terms with this and wish I had it. I’ve always wanted an aqua bra. Jon and Jamie just stood there while I tried to pull myself together. I finally just said “I hadn’t seen myself without bandages” and cried a little bit. I paid for my items and we left, saying very little.
I always kept in the back of my mind that I am certain I made the right choice to have my surgery. I don’t regret it. But it is difficult sometimes to come to terms with how much my body has changed. I had a discussion about it with one of my nurses. She had a biopsy from the top of her breast 5 years ago. She said that even now, every time she looks at herself she is reminded of what she went through.
Ironically, while writing this post I recieved an email notification of the reply made by Eva about my “hardest” post. She is very much at peace with herself, and has wonderful words to share for all of us, and I thought it was very well timed. I wish I could be at the same place she is. I think I will be there, but I’m just not there yet.
I think I have been more upset since the implant swap because while in the expander phase I always had hope that at the end of this I would end up looking fairly normal. Each step of the way, as I’m closer to the end, I realize there is a large chance that won’t happen. I think I’m now mourning the loss that I was working so hard to deny before.
It will get better. It’s not that bad. I was just not prepared for the sight that awaited me today. I’ll get through this, it’s just a silly part of my body that no one sees anyway, but I’m learning I’m not as invinsable as I thought.
October 31, 2010 | Categories: Full Blog, Personal Updates | Tags: breast expanders, breast implants, breast reconstruction, implants, mastectomy, reconstruction | 9 Comments »
The Hardest Post I’ve Ever Written – GRAPHIC CONTENT!
Let me start by making sure you know I’m not writing this in a sour or bitter tone at all. I just thought it was important at this stage to be very honest about how I’m feeling one week after my 2nd step of reconstruction. I have reduced my risk of cancer from 40% to less than 2%, and if nothing else I have given myself a chance to live. There is nothing more powerful or profound, and I am thankful for that chance. I am thankful to no longer be afraid of my body. But it’s not an easy journey.
Tomorrow will be one week from my implant swap. Almost 9 months to the day from my mastectomy surgery. And one year since my first Baja trip that changed my life on many different levels.
It staggers my mind to think of how much has changed since one year ago, 9 months ago, and even one week ago.
I lost a job that I love, friends that I love, and a body I was at home with. But I have gained a purpose, new friends, and a new outlook on life.
But let me say that I do miss my friends, lost for different reasons along the way. I know sometimes you still read my blog, so know I miss you and still love you.
It took a few days for me to get fully back on my feet. If I had an office job, I could have gone back to work today. I look forward to going back to work soon, I’m feeling a little stale in my brain.
The difference between expanders and implants is impossible to fully describe. I am going to do a video soon, and I think that will do a much better job of showing how dramatically different they are. But I’m not ready to do the video yet, but I do have photos to share.
Breast expanders are very hard. They are odd looking. They make you feel freakish, and if you don’t have a sense of humor you might cry a lot. You learn to joke about poking people and not feeling it, having foobs, titanium boos, frankenboobs, grapefruits, basketballboobs, barbie boobs…really the jokes can be endless.
But the reality is that having breast expanders is difficult. It’s hard on your body, but it’s also hard on your mind, spirit, and sexuality. You lose nerve endings not only in such a large portion of your body (collar bone to mid ribs, armpit to armpit), but also in an erogenous zone. Graphically speaking, your breast are scooped out, burned out, and then replaced with extremely hard plastic balls that you voluntarily go and have enlarged over a period of months. In some cases, like mine, your nipples are removed and discarded like trash.
Just when you’re healed, and have sort of come to terms with your body you get to do it all over again…remove the expanders and place implants. Your implants are called ‘high profile’ so that they stand out like a ‘normal’ breast instead of laying flat to boost breast tissue as in a normal augmentation.
I had a lot of complications after my mastectomy surgery and with the expanders. My complications are documented throughout my blog and videos so I’m not going to go through it again, but I also had it easy compared to some. My friend Teri…that’s a story that will break your heart. So it could have been worse, and I’m thankful that many of my friends had it much easier. All of our stories are a little different.
My implant swap went without a hitch, and I seem to be healing well. I have an appointment for my next surgery after Christmas. I will be having my first session of fat grafting and the first stage of nipple reconstruction. I had not decided fully on nipple reconstruction until a few months ago. As a matter of fact, I was pretty sure I wasn’t going to do it. My breasts were looking so freakish, why make it worse by trying to put a fake but normal nipple on them? But now that I can wear bras again I think that looking at myself and seeing a nipple will help me heal. On the inside.
I know my post right after my implant swap was pretty optimistic (which I always try to be), and I even posted a reply a few days ago that I thought one day no one would be able to tell that I had such a radical surgery. Well, I’m not on drugs anymore and so I would like to say I definately had on rose colored glasses when I wrote that. But let me be fair, I have no idea what things will look like after fat grafting and nipple reconstruction, and Jon keeps telling me to be patient (if you know me, you know this is something I hear all the time because I AM NOT PATIENT!). So we’ll see.
And of course I will show you.
But as of right now I am in some ways thrilled and in other ways totally devistated.
I am thrilled because I’m so soft! My skin feels differently, my body feels like it did before surgery. I did a video where I poked and pounded on my chest to show how hard it was. I could never do that now. Now if I poke, everything moves! My skin is soft. My breasts are soft. I can lay in any position and sleeping doesn’t hurt. 9 months of pain and freakishness are gone. And it is a huge relief.
I am devistated because I still look weird. My plastic surgeon was kind enough to give me their photos from right before my mastectomy surgery and also from right before the removal of the expanders. I have taken photos from 5 days post op of the implant swap (when the expanders were removed and the implants put in). These photos show you how I looked when I was a real girl, how awkward and strange expanders are, and what I’m like right now. I would like to point out that the photo posted a few days ago is no longer accurate, I had a lot of swelling and the size and shape of my breasts has changed a lot. I kind of liked those boobies. But they left me too.
This is the photo I’m referring to:

1 Day Post Op with Drains
So here we go with the full, unedited version of what a body goes through during mastectomy and reconstruction, at least to this point. I received the photos of my pre surgery body just yesterday and it broke my heart a little bit. I didn’t have any photos, I didn’t take any before surgery for myself. So take a deep breath…

Before Mastectomy

Expanders After 9 Months

Implants 5 Days Post Op

Before Mastectomy

Expanders After 9 Months

Implants 5 Days Post Op

Before Mastectomy

Expanders After 9 Months

Implants 5 Days Post Op

Before Mastectomy

Expanders After 9 Months

Implants 5 Days Post Op
So there you go. Please don’t misunderstand my post, I am thankful, and happy. But I don’t believe there is a person out there that could go through this type of change without some feeling of loss. I know many people find my blog looking for answers and insight about their future and so I want to be honest and open about how I feel and what I’m going through. I couldn’t find the information I needed before surgery and so I created this site and blog and I promised to hold nothing back.
Don’t feel badly for me, I have taken control of my future as much as I can and taken steps to save my life. It’s a good thing. It’s a wonderful choice. But it’s not without difficult moments. But I will take the difficult moments and pain and discomfort to have a longer life, and to hopefully spare myself the pain my mom has gone through for so long. And if you are on this journey too, I wish you the best and offer all of the encouragement I can.
Thank you to all of my readers, the silent ones and the vocal ones. It makes all of the difference in the world to know I’m not alone.
October 22, 2010 | Categories: Full Blog, Medical Updates, Personal Updates | Tags: bilateral matectomy, breast expanders, breast implants, breast reconstruction, changing a life, help others, mastectomy, reconstruction | 43 Comments »
From a Foggy Mind
Well, I’m home from both California and from my implant swap. There is so much to update, especially about my race, but I’ve been either on the road or in doctor’s offices every day since the race last weekend and now with a foggy head I’m afraid I’ll either ramble more than usual or forget important details about the race. I will do a post soon all about the Powder Puff, and sharing photos, but right now my focus is on my implant swap.
We headed to Denver at 4:30 yesterday morning, my surgery started at 7:30. I sat down with the nurse first, went back over the plan of attack. They had ordered 3 different implant sizes for me…350cc, 375cc, and 400cc. They planned on opening my incisions, removing the dreaded expanders, and then inserting one of each size, sit me up (while asleep) to see which ones looked better and fit properly. I told them to start with the 400s.
Let me explain a little so that I don’t look like a complete bimbo about my chest. Before finding the lump last year I was finally, for the first time in my life, happy with my body. Figures, huh? When I sat down with my plastic surgeon and discussed options I decided to go with expanders instead of the DEIP flap because I didn’t have enough abdominal fat to recreate a breast the same size as what I had. I know that sounds vain, but I didn’t want to go through a 6 month recovery and end up with a very small chest. Going with expanders meant more surgeries, but a faster recovery. With a DEIP flap you can never go bigger, you can’t get larger implants later. But with expanders and implants you face possibly having multiple surgeries over your lifetime because implants fail. Anyway, I liked the size I was before surgery, and didn’t want to end up smaller. I also wouldn’t have minded being bigger. Not like Pam Anderson, just a little rounder to match my round hips. I want to be an hourglass, no longer a pear.
For you guys out there, or women that have lived through breast augmentation, a 400cc implant is very large for augmentation because there is still a breast on top of the implant. For women like me, it’s not augmentation, or a boob job, the implant is the only breast we have. No tissue, no fat, just muscle over the implant to recreate a breast instead of adding to the shape and volume of a natural breast.

Meeting My New Boobies
At my pre-op appointment on Wednesday I asked if I could see the 400cc implant, I had not seen them before. So my nurse retrieved on for me and I was totally bummed out. My surgeon keeps telling me that I want smaller, and I keep telling him I want larger. But by Wednesday we were at the end, no more time or room for a larger implant. Hindsight, I should have talked about it more. But I didn’t, and now it’s over.
The surgery went well. I don’t remember much about waking up. Actually, I’m trying hard to remember anything at all and I cant. Oh, wait, I remember I kept telling them I didn’t want to puke on the 3 hour drive home over the mountains, so they kept giving me anti-nausea meds. I was feeling urpy as soon as I woke up. Jon says I was up and walking and talking coherently, but I don’t remember that at all. I remember stopping just past the Eisenhower tunnel to walk around, trying to prevent another round of blood clots. Best of all, I do remember Jamie standing at the door waiting for me when we got home. He doesn’t like to talk or think about all of this, but he does suck it up and he’s there for me when it counts.
I’m not sure what time I got home, but once I was settled Jon sent out texts to let everyong know I was home and ok. I am trying hard not to take pain meds, or just take them at night. I was pretty loopy yesterday, but haven’t had meds so far today.
It is amazing how much softer my chest is now. It almost feels real. I expected the muscles over the implants to be hard and that the breasts would feel abnormal to the touch because of the muscle. But so far that’s not the case. It’s very strange to go from rock hard back to soft again. It’s a nice feeling.
I do have drains. I hate drains. But these aren’t as bad as last time. Last time they pulled on the expanders and caused unbelievable pain. These aren’t too bad. I did get my hand stuck in the loop of one last night while sleeping. You can bet that woke me right up! But other than that the drains are ok.
I do hurt a lot when I move, so I just try to to move. I would say the pain with drains and expanders was 10+++, with expanders after drains removed about 8, and my pain today with implants and drains is about a 7. But I think I heal better without pain meds, so I’ll just lay low for a few days. My drains get removed on Wednesday.
It is easier than the first surgery, but I am painful, and a little disappointed in the size. I don’t think I’m as large as I was, and not as large as I had hoped. We still have fat grafting to go through, but I don’t see that as adding to the size. But we’ll see. I’ll have that in December.

Compression Bra and Drains

Drain on Right Side, Folding of Implant Can Be Seen As a Lump Under Drain Bulb

1 Day Post Op with Drains
My doctor will be trying to even out the shape and height with fat grafting. You can see one side is still higher than the other. But as my doctor says, breasts are sisters, not twins.
Don’t get me wrong. I’m happy, and relieved that my cancer risk is so low now. I am happy with my choice to do this surgery, and feel like a huge weight has been lifted now that I don’t need MRIs every six months. Maybe I’m a little down because I’m still loaded up with drugs from yesterday. The last 2 months have also been like a whirlwind for me, working 3 jobs and trying to prepare for the Powder Puff. Now the race is over, I’m back in Colorado, and I can’t get back to my retail job until after November 1st. So I’ve gone from full out busy to laying around recovering, and I’m not the laying around type. So be patient with me, I’m sure I’ll be more upbeat soon.
Thanks for all of the supportive emails, texts, and calls. It’s wonderful to know I’m not alone! I’ll check in again soon, right now I’m feeling a nap in my immediate future.
October 16, 2010 | Categories: Full Blog, Medical Updates, Personal Updates | Tags: 400cc implants, breast expander swap, breast expanders, breast implants, breast reconstruction, compression bra, drains, expander swap, pre-op, reconstruction | 6 Comments »
Titanium Boobs and Intimacy, or Stupid Things People Say, Part Two
If you’re my friend on Facebook you may have already seen this story. Last weekend I was at a concert at the local fair and talking to someone about breast cancer and what I’ve been through this year. It was an interesting conversation, her mom had breast cancer many years ago and it was interesting to hear how things have changed over the years.
This beautiful women looked at me at one point in the conversation and said “You should feel very lucky that your husband can still find you attractive after your surgery. You’re very fortunate he hasn’t left you.”
Wow. What do you say to that?
Now, I will say that Jon would have a million reasons to leave me, with or without titanium boobs. I’m not easy to live with, not even close. Maybe that’s why he lets me leave home so often!
I’m a trainwreck, overly ambitious, strong willed, stubborn, and aggressive. But to desire me, or not, because of my surgery?
Anyway, I was floored. So what were my choices, to not have surgery because I may no longer be sexy to men (if I ever was) and wait for cancer?
It did get me thinking about it, and about my body on an intimate level. I still kind of ignore my chest since the surgery, it’s still hard for me to look at. So if it’s hard for me to look at, it makes sense that it would be hard for a man to look at me and feel anything other than curiosity. My blogging friends stay away from the talks of what we go through after this surgery as far as intimacy goes, but maybe that’s not a good idea. Maybe we need to talk about it. Maybe someone reading this feels exactly like the woman at the concert.
Let me address the comment first of all. I would like to think that I wouldn’t be married to someone that would find me unattractive in my current state. I like to think that my brain, courage, and fire would be the real reason for a man to be attracted to me, not because of my breasts. And if Jon married me for my boobs in the first place that would be stupid, they weren’t amazing to begin with. But I still miss them.
Anyway, I agree that if a man is sensitive to medical procedures he may be turned off by the scars and recovery process. If a man is extremely worried about the beauty of his wife I can see that he may be freaked out by a nipple-less woman. But to fall out of love with her?
I know I’m arguing both sides of the arguement when I say this, but if I were single and having to face dating I would be terrified by my new body. Exposing my new body on that level would take incredible amounts of trust, putting my heart right there on the line, and right or wrong I would be waiting to see if my new lover would turn away in disgust, become pre-occupied in the unusual parts of me, or touch me with love and passion. And the moments it would take to find out the answer would be breathtaking and terrifying. I can’t imagine an intimate moment where I would feel more exposed or frightened.
I’m not crazy, I do see the irony in what I just said since I have videos of my body exposed on the internet. But a video explaining medical procedures to ease the fears of others is very different from exposing your body in a moment of intimate sharing.
My ‘beauty’ is not in my breasts! It never was! What makes me the woman I am has nothing to do with what is in my shirt. We are all powerful and wonderful because of what is inside of us, not because of what a man touches. And the most intimate and loving touches are the soft caresses on our souls and hearts, not our breasts. It’s far more intimate to fall asleep close together holding hands than having your breast touched, at least in my mind. And I have never thought I would be less of a woman because I have Frankenstein scars and hard breasts.
Frankly, I think I am more of a woman now.
Please, for those of you going through this, please don’t place the value of yourself as a woman in your lost breasts. You are amazing, no matter the scars and the natural fears. You have a fire within you that burns to be alive, and that radiates throughout your body and shows the world that you are amazing with or without those scars.
September 3, 2010 | Categories: Full Blog, Personal Updates | Tags: bilateral matectomy, breast cancer, breast expanders, breast implants, breast reconstruction, intimacy after mastectomy | 10 Comments »
A Day Full of Release
Yesterday offered unbelievable release for me, and I am very thankful. With a friend in surgery, awful binding pain constantly in my back and entire body, and a transportation truck a week behind in moving my race truck, I needed some good news yesterday!
July 8, 2010 | Categories: Full Blog, Medical Updates, Personal Updates | Tags: bilateral matectomy, breast expanders, breast implants, breast reconstruction, chiropractor after breast reconstruction, donate, off road racing, team courage | 4 Comments »
Dr. Visit, $150. Surgery Scheduled, $100,000. Stretching, Priceless.
Great news from Denver, it seems that doing Yoga caused the ports of the expanders to show thru my muscles and skin, but I don’t have to worry about the ports wearing thru and causing damage. That is great news.
Even better, we sat down and scheduled my next surgery date. I will be having surgery Friday, October 15th. They will take out my awful expanders and put in implants on that day. I should be able to go home that day, or at least to a hotel if I don’t feel like making the ride across the Rockies, and will need to take a few weeks off of work. But it’s exciting to be finally moving forward again.
June 30, 2010 | Categories: Full Blog, Medical Updates | Tags: bilateral matectomy, breast expander ports, breast expander rings, breast expanders, breast implants, breast reconstruction, mastectomy complications, reconstruction | 2 Comments »
Possible Complications, Back to Denver
Hello there!
I hope this update finds you all happy and healthy!
I had quite a surprise 2 days ago when I got undressed. I looked in the mirror and could clearly see a large circle on top of each breast. The circles look like perfectly round seams of the expanders. They don’t hurt, but my worry is that with the stitches that are making their way through my muscle and skin, I certainly don’t want to experience something this large doing the same thing! I little stitch is very different than a 3 inch ring!
June 22, 2010 | Categories: Full Blog, Medical Updates | Tags: breast expander ports, breast expander rings, breast expanders, breast implants, breast reconstruction, mastectomy complications | 10 Comments »
BOOBIES! Oh, and a Chicken.
The summer is well underway at last, and its time for serious fun and play time. But for some of us the summer brings stress and surgery and uncertainty.
June 5, 2010 | Categories: Full Blog, Medical Updates, Personal Updates | Tags: bilateral matectomy, blood clot, breast cancer, breast expanders, breast implants, breast reconstruction, finding a lump, reconstruction | 7 Comments »
Notes From A Stressed Out Mind
Hmmmm, it’s been a crazy week. Ha! I guess it’s really been a crazy life, but let’s just talk about the recent days.
All of a sudden, Courage is growing rapidly. We should reach 50,000 YouTube views by June 1st, and 100,000 views in August. We now sometimes hear from several women a day, and that is the best news of all. I have also found some pretty amazing women myself, and my wheels are turning in my mind about ways to make them part of my Courage Vision.
May 19, 2010 | Categories: Full Blog, Personal Updates | Tags: breast expanders, breast implants, changing a life, courage is my strength, mastectomy, reconstruction | 4 Comments »
What I Didn’t Know About My Surgery
May 16, 2010 | Categories: Full Blog, Medical Updates, Personal Updates, Videos | Tags: bilateral matectomy, breast cancer, breast expanders, breast implants, breast reconstruction, mastectomy, reconstruction | 4 Comments »
3 Months Post Op Results
So many of my new Courage friends are dealing with new expanders and are a little concerned with the way they look. I wanted to take a minute to let everyone know I’m doing okay, while also comparing 2 weeks post op to 3 months post op so that you can see that although there is still a long way to go, the results improve dramatically after a few months.
May 12, 2010 | Categories: Full Blog, Medical Updates | Tags: bilateral matectomy, breast cancer, breast expanders, breast implants, breast reconstruction, reconstruction | 6 Comments »
A Post About A Man’s Comment
This blog did get a post awhile back from a man going through this surgery with his wife. I was on the road and couldn’t give it the time it deserved and want to talk a bit about it now. Also, some of my medical posts are so far down the blog that some people don’t see them, and don’t know what this surgery means for women.
Alex, although you have probably started going through this already, your wife will be almost crippled by her surgery. After a mastectomy a woman can not use her arms, can not sit up by herself, can not eat, brush her hair, or even clothe or go to the restroom by herself.She will have drains and bulbs full of blood hanging out of her body that are constantly pulling on injured muscles and causing her tremendous pain. She will look into the mirror and see a butchered body where her beautiful body once was and not even recognize herself. She will have to face the fact that she will never again feel her body react to a man’s touch or to cold, and she will deal with people who think this operation is just like getting implants.
May 6, 2010 | Categories: Full Blog, Medical Updates, Personal Updates | Tags: bilateral matectomy, breast cancer, breast expanders, breast implants, courage is my strength, mastectomy, reconstruction | 16 Comments »
Half Way Through Expanders
Two weeks and two days ago, we were at 1,200 visitors and 13,000 video views. Today we are at 1,600 visitors and almost 25,000 video views! That is a wonderful accomplishment for 2 weeks!
I realized last night, while I couldn’t sleep, that I’m half way through my process with expanders. It’s a little sad, I would be having my implant swap right now if I had not lost my job while in the hospital. Implants will be so much more comfortable, and now I have to wait until September for my new insurance to kick in.
May 6, 2010 | Categories: Full Blog, Medical Updates | Tags: breast expanders, breast implants, breast reconstruction, off road racing, team courage | 5 Comments »
4 Months, 1,200 Visitors, 13,000 Video Views, and Baja Bound!
Hi Friends!
Courage Blog is almost 4 months old and we have reached the incredible mark of over 1,200 visitors and over 13,000 video views on YouTube! That’s not visits, but individual visitors. Thank you to all of you that have spread the word and have helped make Courage such a success in such a short time!
April 20, 2010 | Categories: Adventure Updates, Full Blog, Personal Updates | Tags: baja, breast expanders, breast implants, breast reconstruction, changing a life, implants, Mexican 1000 rally, reconstruction, team courage | 1 Comment »
Three Weeks Post Op, Surgery Difficulites
This post was a little too long, so the video had to be separated into two videos. Lots of information!
February 25, 2010 | Categories: Full Blog, Medical Updates, Videos | Tags: bilateral matectomy, blood clot, breast cancer, breast expanders, breast implants, breast reconstruction, mastecomy, reconstruction | 7 Comments »
The Story of Courage….Video Contains Medical Nudity
February 5, 2010 | Categories: Full Blog, Medical Updates, Videos | Tags: bilateral matectomy, breast cancer, breast expanders, breast implants, breast reconstruction, mastectomy, reconstruction | 3 Comments »
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